Tuesday, October 7, 2014

Sophia and Down syndrome.....her book

Two years after Sophia was born, Jayden was starting her second year of preschool.  I decided that I wanted to do something more for World Down Syndrome Day, which is March 21st every year.  So when I came across a video online, where a mom was explaining Down syndrome to her six year old son, whose baby brother had Down syndrome, a light bulb clicked.  I'd make a book about Sophia and Down syndrome and I would start sharing it with my kids' classmates!  I have been doing this every year for the past 3 years and hope to continue as they get older and sharing more.  This is an updated version, with new pictures, to share this year.....

This is Sophia

There are lots of things that we know about Sophia.
* She has blue eyes and long blond hair.
* She loves to cuddle and give hugs and kisses.
* She loves to play outside; swinging, riding her bike and playing with friends.
* Her favorite thing to do is watch Barney on T.V. and dance to the songs!




What you may not know about Sophia is.....she has Down syndrome.  Down syndrome makes Sophia extra special because only a few lucky babies are born with it.

Down syndrome means a lot of things....All of our bodies are made from a special code.  This code is made of long strings that make us all talk, learn, think, and look differently from one another.  You have 46 strings in your special code, but Sophia has one extra string in her code, so she has 47.

Having an extra string in her code means:
* It might take her a little longer to learn new things.
* Her muscles are a little weaker and she needs therapy to make her strong.
* And she might not look just like you and me....But most importantly her extra string means that we have a little bit more of her to love!

Sophia will always have Down syndrome.  It will be a part of her life forever.  Some people think that Down syndrome is a bad thing, but that is not true!  It makes her extra special to everyone!!!

Some people might not understand what it means to have Down syndrome.  They might pick on Sophia or call her names for being a little different.  That's why she needs friends to be there for her, to protect her, and to help teach people that it is okay to be her friend and to love her!

Sophia's special code will let her do lots of things like:
*Ride a bike
*Go to school and learn
*Run and Jump
*Have friends
*Talk, laugh and tell jokes
*Play sports
And many other things, JUST LIKE YOU!!!!  Your special codes might be different, but you are really just the same!

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